Cystinosis Diagnosis and Management Advice Service

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process.

Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The hub allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process.

Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The hub allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

NHS England is seeking to commission a service to deliver cystinosis diagnosis and management advice through the publication of this provider selection process.

Services will be provided from 3 adult and paediatric hubs, either as a joint bid between two organisations (one covering adult services and one covering paediatric services) or as a single integrated service bid from the same organisation, covering both adult and paediatric services. Services will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources. Services will support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The hub allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult and paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult and paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

Providers wishing to be considered for the delivery of these services will need to respond to the provider selection documentation and submit responses prior to the deadline stated in this notice.

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services.

The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients’ society Cystinosis Foundation UK.

NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further ‘light-touch’ one stage provider selection approach will be required.

Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients.

In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The centre allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England
• Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 5 – one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 6 – one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers.

The contract duration for this service will be four years, including any extension [three years plus a one-year extension].

The response deadline is 12:00 hrs midday on Tuesday 21st September 2021.

To register your interest please follow this link uk.eu-supply.com/ctm/supplier/publict… ↗ and either login or register on EU Supply and search from ID number 45132.

There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email [email protected] by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services.

The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients’ society Cystinosis Foundation UK.

NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further ‘light-touch’ one stage provider selection approach will be required.

Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients.

In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The centre allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England
• Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 5 – one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 6 – one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers.

The contract duration for this service will be four years, including any extension [three years plus a one-year extension].

The response deadline is 12:00 hrs midday on Tuesday 21st September 2021.

To register your interest please follow this link uk.eu-supply.com/ctm/supplier/publict… ↗ and either login or register on EU Supply and search from ID number 45132.

There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email [email protected] by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.

NHS Arden and Greater East Midlands Commissioning Support Unit (AGCSU), on behalf of NHS England (referred to as the Commissioner), is seeking to establish Cystinosis Diagnosis and Management Advice Services and are inviting interested providers to respond to this market engagement exercise. The proposed service model is described in the NHS England service specification for the provision of Cystinosis diagnosis and co-ordination of management (all ages). This sets out the detailed objectives and clinical criteria for the services.

The prevalence of Cystinosis in Europe is 0.5 per 100,000. There are approximately 200-300 patients in the UK, this is based on prescription records and reports from the patients’ society Cystinosis Foundation UK.

NHS England is looking to gauge the potential market interest for providing these services and would like to hear from suitably qualified and experienced providers with the necessary capacity and capability (or a demonstrable ability to acquire the necessary capacity and capability) within the market including potential collaboration opportunities amongst providers. Following this, where there is a single provider expressing an interest in a Lot who would be able to meet the requirements, direct awards may be made. Where there are several providers within a lot, a further ‘light-touch’ one stage provider selection approach will be required.

Partnerships/integrated working will be required between adults and paediatric services; in particular to support the transition pathway for patients.

In line with the service specification, services will be provided from 3 adult and 3 paediatric hubs. These will be selected to offer geographically equitable access to minimise patient travel times whilst also offering access to multidisciplinary resources and to support national networking of the highly specialised centres with the adult and paediatric centres working closely together to offer an integrated service and excellent transition of patients. The hubs will be required to work in a national network to support the development of national policies and protocols and to facilitate research.

The centre allocation model will be based on a regional lot breakdown as follows:

• Lot 1 - one hub for adult cystinosis services to cover the NHS England population in the North of England
• Lot 2 – one hub for adult cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 3 – one hub for adult cystinosis services to cover the NHS England population in South of England and southern areas of East of England
• Lot 4 - one hub for paediatric cystinosis services to cover the NHS England population in the North of England
• Lot 5 – one hub for paediatric cystinosis services to cover the NHS England population in the Midlands and northern areas of East of England
• Lot 6 – one hub for paediatric cystinosis services to cover the NHS England population in the South of England and southern areas of East of England

The market engagement includes a clear outline of the service requirements along with a questionnaire for bidders to respond to, including the key requirements to ascertain the capability of providers.

The contract duration for this service will be four years, including any extension [three years plus a one-year extension].

The response deadline is 12:00 hrs midday on Tuesday 21st September 2021.

To register your interest please follow this link uk.eu-supply.com/ctm/supplier/publict… ↗ and either login or register on EU Supply and search from ID number 45132.

There will also be an opportunity to attend a market engagement event via Microsoft Teams at 4pm on Wednesday 11th August 2021. If you would like to participate in this event, please email [email protected] by 10am on Tuesday 10th August 2021 . All slides and questions and responses will be made available to all bidders following the event.