Official UK procurement notice
International Rare Disease Consultation
Procurement agent: Cardiff and Vale University Health Board·On behalf of: NHS Wales Shared Services Partnership-Procurement Services (hosted by Velindre University NHS Trust)
What is being bought
Published requirement descriptionThe Cardiff and Vale University Health Board plan to lead a global Priority Setting Partnership (PSP) on rare diseases using the James Lind Alliance (JLA) approach. This process brings together patients, carers, and healthcare professionals to identify the most important unanswered research questions. A steering group of 20 international stakeholders, half of whom will be people with lived experience of rare diseases or their advocates will define the project’s scope. The PSP will take a broad, inclusive view, gathering research priorities from people of all ages and from low-, middle-, and high income countries
The lotProcurement structure
single lot · no lot value publishedProcedure terms & legal framework
From the official record- Procedure method
- Below threshold - without competition
- Legal basis
- UKPGA · 2023/54 Procurement Act 2023
- Notice status
- Awarded without competition
- Procurement threshold
- Unspecified in notice
- Regulatory regime
- Standard
- Commercial structure
- Stand-alone contract (no framework)
- Competition type
- Direct award (no call for competition)
- GPA / WTO covered
- Unspecified in notice
- Recurring procurement
- Unspecified in notice
- First published
- 5 Feb 2026, 16:07 GMT
- Last source update
- 16 Jun 2026, 16:58 BST
- Authority reference
CAV-DIR-(25-26) 227- FTS notice number
2026/S 000-056825- Latest notice
- Contract details notice (UK7)
- Delivery area
- Official registry OCID
ocds-h6vhtk-06495bFind a Tender
Notice history
4 events · 2 releases on Find a Tender · since 5 Feb 2026- Transparency notice published5 Feb 2026, 16:07 GMTUK5
- Contract signature expected23 Feb 2026, 23:59 GMTscheduled
- Contract details notice published16 Jun 2026, 16:58 BSTUK7
- Buyer details updated16 Jun 2026, 16:58 BST
Commercial outcome & contract awards
Published awards, contracts and bid statistics, not a forecast| Awarded to | Value | Date | Status |
|---|---|---|---|
| Quay Central LimitedSMERare Disease Consultation9 Mar 2026 – 2 Mar 2028 | £37,500 | — | Awarded |
Contracts
International Rare Diseases Consultancy · Quay Central LimitedSME
- Signed
- 26 Mar 2026
- Value
- £37,500
- Period
- 1 Apr 2026 – 31 Mar 2028
- Status
- active
Contracting authority & participating public bodies
3 public bodies on the noticeClients of the procurement agent
- NHS Wales Shared Services Partnership-Procurement Services (hosted by Velindre University NHS Trust)Beneficiary authority
- NHS Wales Shared Services Partnership (hosted by Velindre University NHS)Procuring entityPublic authority - sub-central governmentWelsh devolved regulations applyThe NHS Wales Shared Services Partnership (NWSSP) plays a vital role in supporting NHS Wales by delivering a wide range of professional, technical, and administrative services. It is hosted by Velindre University NHS Trust, which means Velindre provides the governance and infrastructure to support NWSSP’s operations, but NWSSP itself serves all NHS organisations across Wales.
Bidders & participating suppliers
1 commercial party on the notice- Quay Central LimitedAwarded supplier
Official documents & specifications (2)
Official links; attachments are not copiedNotices published for this procedure
- Contract details notice Contract details notice on Find a Tender
- Transparency notice Transparency notice on Find a Tender